I’m Dreaming Of A Silent Class Christmas Shirt! Might was a extremely powerful month for Dave and me – however not for Lucas! The Gosh physio workforce had really helpful a referral to wheelchair providers to produce a chair for Lucas to make use of on an ‘as and when’ foundation, reminiscent of college journeys or lengthy days out. We knew this could be good for him and that its introduction would ease him into future full-time utilization, however seeing him in it in our lounge was an actual tear-jerking, heart-stopping second. Our hang-up, not his. He loves it, particularly with its superhero wheels!
To spherical off Lucas’ Duchenne 12 months he had his college sports activities day final month, a day most DMD mother and father dread. I’m Dreaming Of A Silent Class Christmas Shirt! However Lucas being Lucas, he completely smashed it, cherished each second, even accepted his exclusion from the sack race (for apparent causes), revelling in being given the honour of handing out the winner’s stickers! Is there no finish to this boy’s expertise and bravado? He by no means ceases to amaze us, make us proud… and humble… and make our hearts burst.
Scientists, researchers, medical and neuromuscular consultants and Duchenne victims won’t ever cease of their efforts to discover a treatment for this merciless situation – and we’ll by no means cease praying that they succeed. I’m Dreaming Of A Silent Class Christmas Shirt! Though devastated on the information final month of the two-year trial drug Ezutromid being halted because it didn’t meet required endpoints, there are at present two different trials underway which we hope might be profitable – Exon-skipping and Micro-dystrophin gene remedy. Your days are numbered Duchenne!